It’s extremely important to begin treatments as soon as possible after a rare neuro-immune diagnosis. Treatment protocols depend on the diagnosis. Treatment for Acute Disseminated Encephalomyelitis (ADEM), MOG Antibody-Associated Disease, Neuromyelitis Optica Spectrum Disorder(NMOSD), Optic Neuritis (ON) and Transverse Myelitis (TM) including Acute Flaccid Myelitis (AFM) in their early stages involves quieting down the immune system as quickly as possible, before damage is done. Time is critical.
It’s very important to be working with a physician who has good experience with these disorders, because acute treatment is going to involve primarily or exclusively clinical judgment. There are very few clinical centers with physicians who specialize in TM or NMO (e.g., University of Texas Southwestern, Johns Hopkins, Mayo Clinic, University of California San Francisco, Walton Centre – Liverpool, England), but there are numerous Multiple Sclerosis Centers associated with prominent medical centers and medical schools. A specialist from one of these centers should be considered, as they have experience in demyelinating disorders of the central nervous system.
The acute therapies most frequently used to treat an inflammatory attack include: high dose intravenous steroids (methylprednisolone), Plasmapheresis (Plasma Exchange or PLEX), Immunoglobulin Therapy (IVIG), and cyclophosphamide.
For detailed information, please visit the acute treatment sections on the Transverse Myelitis Association at www.myelitis.org.
My "home away from home" A truly wonder-filled medical center
1775 West Dempster Ave, Park Ridge, IL 60068
JHMC has a specialty Transverse
Myelitis Center - one of a kind. They see TM patient daily. 1800 Orleans St. Baltimore, MD 21287
Internal Medicine (ALGH)
My Team Captain - there's no better
Director of Neurology (ALGH)
My main man. Great collaborator.
She pushes hard & always inspires me.
Nancy Van Staalduinen & Emily Bilinski - my compassionate PT/OT Alchemists, working with me everyday on 6 West to transform my body and soul.
Keeps me flowing regularly
Outpatient Physical Therapist (ALGH)
My Guide to the mysteries of rebuilding my legs, one day at a time.
Took my 1st spinal tap - Brought me the news of my TM
847 - 723-4088
First doc to see me after my 1st hospital stay.
Extremely helpful with re-starting my recovery in February 2018.
Finally decided not to operate of my spine in April 2017
He nipped my throat cancer in the bud so it never got greater than DIA - a miracle-worker
Neurosurgeon (Johns Hopkins)
Known worldwide. Did two spinal angiograms for me.
My blood flow is critical, especially if one source of my TM is vascular.
Helped rid me of Throat Cancer before it really took hold (knock on wood)
For all the hundreds of other nurses, nurse techs, maintenance & facility workers, medical equipment techs, and the patients at ALGH on floors 14 and 10 and 6 West, and 4. I LOVE YOU ALL!
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With years of research education and experience, The Advocate Nurse is making a difference everyday. We empower. We Serve. We Thrive. It's not just a job to them. It's who they are . . . and they never failed me in any way. Simply Marvelous!