Just Diagnosed with TM? Start Acute Treatments ASAP

Additional Information

It’s extremely important to begin treatments as soon as possible after a rare neuro-immune diagnosis. Treatment protocols depend on the diagnosis. Treatment for Acute Disseminated Encephalomyelitis (ADEM), MOG Antibody-Associated Disease, Neuromyelitis Optica Spectrum Disorder(NMOSD), Optic Neuritis (ON) and Transverse Myelitis (TM) including Acute Flaccid Myelitis (AFM) in their early stages involves quieting down the immune system as quickly as possible, before damage is done. Time is critical.


It’s very important to be working with a physician who has good experience with these disorders, because acute treatment is going to involve primarily or exclusively clinical judgment. There are very few clinical centers with physicians who specialize in TM or NMO (e.g., University of Texas Southwestern, Johns Hopkins, Mayo Clinic, University of California San Francisco, Walton Centre – Liverpool, England), but there are numerous Multiple Sclerosis Centers associated with prominent medical centers and medical schools. A specialist from one of these centers should be considered, as they have experience in demyelinating disorders of the central nervous system.


The acute therapies most frequently used to treat an inflammatory attack include: high dose intravenous steroids (methylprednisolone), Plasmapheresis (Plasma Exchange or PLEX), Immunoglobulin Therapy (IVIG), and cyclophosphamide.

For detailed information, please visit the acute treatment sections on the Transverse Myelitis Association at www.myelitis.org

My Healthcare Team

Advocate Lutheran General Hospital

My "home away from home"  A truly wonder-filled medical center

1775 West Dempster Ave, Park Ridge, IL 60068  

847-723-2210  

https://bit.ly/2GaKLgX  

Johns Hopkins Medical Center

JHMC has a specialty Transverse

Myelitis Center - one of a kind. They see TM patient daily. 1800 Orleans St.  Baltimore, MD  21287 

410-955-5000 

https://bit.ly/2kayrEB

Dr Carol Straka

Internal Medicine (ALGH)

My Team Captain - there's no better

847-663-9700  

http://www.oakmillmedical.com/

Dr Wayne Rubenstein

Director of Neurology (ALGH)

My main man. Great collaborator.

847-298-4088

https://bit.ly/2LfoRwN

  

Dr Amy Sun

Rehabilitation (ALGH)

She pushes hard & always inspires me.

847-318-2500

https://bit.ly/2IxNSFL


  

Nancy & Emily

Nancy Van Staalduinen & Emily Bilinski - my compassionate PT/OT Alchemists, working with me everyday on 6 West to transform my body and soul.

Dr Robert Kapilinski

Urologist (ALGH)

Keeps me flowing regularly

847-470-1500    

https://bit.ly/2IV2gHq


Ms Kelly Snow

Outpatient Physical Therapist (ALGH)

My Guide to the mysteries of rebuilding my legs, one day at a time.

847-824-5165

https://bit.ly/2rUUSSA


Dr Andrew McDougall

Neurologist (ALGH)

Took my 1st spinal tap - Brought me the news of my TM

847 - 723-4088 

https://bit.ly/2k93bWu

Dr Terrence Li

Neurologist (ALGH)

First doc to see me after my 1st hospital stay.

847-723-4088   

https://bit.ly/2IwtdSi

Dr Pavan Murty

Neurologist (ALGH)

Extremely helpful with re-starting my recovery in February 2018.

847- 723-2210   

https://bit.ly/2ISWR3A


Dr George Bovis

Neurosurgeon (ALGH)

Finally decided not to operate of my spine in April 2017

847 -723-2210   

https://bit.ly/2ISrje1

Dr Asif Lahke

Gastroenterologist (ALGH)

He nipped my throat cancer in the bud so it never got greater than DIA - a miracle-worker

847-318-9595  

https://bit.ly/2LcW8IJ



Dr Daniel Becker

Director and Founder of the International Neurorehabilitation Institute (INI)   

http://inirehab.com/

Faculty member in the Johns Hopkins Hospital Transverse Myelitis Center.

410-614-9016  

https://bit.ly/2IDdcZT



Dr Phillipe Gauilloud

Neurosurgeon (Johns Hopkins)

Known worldwide. Did two spinal angiograms for me.

410-955-5000

https://bit.ly/2IiQXVV

Dr Angel Galves

Hematologist (ALGH)

My blood flow is critical, especially if one source of my TM is vascular.

847-268-8200    

https://bit.ly/2s2Gg30 



Dr John Ekland

Oncologist (ALGH)

Helped rid me of Throat Cancer before it really took hold (knock on wood)

847-827-9060   

https://bit.ly/2KEffdE

A Blessing Offerred

For all the hundreds of other nurses, nurse techs, maintenance & facility workers, medical equipment techs, and the patients at ALGH on floors 14 and 10 and 6 West, and 4. I LOVE YOU ALL!

  

See Below https://bit.ly/2IID97r

The Grand Advocate Nurses

With years of research education and experience, The Advocate Nurse is making a difference everyday. We empower. We Serve. We Thrive. It's not just a job to them. It's who they are . . . and they never failed me in any way. Simply Marvelous!